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A Blended Digital Self-Management
tReatmEnt for FatigUe in multiplE scLerosis (REFUEL-MS)

Our aim is to design, develop, evaluate and implement a tailored digital treatment to help manage MS-fatigue.

 

REFUEL-MS explores thoughts, feelings and actions which research shows can make fatigue better or worse. This knowledge will be used to develop personalised ways of managing fatigue, including incorporating physical activity into daily routines. The treatment will be delivered digitally with guidance from physiotherapists and occupational-therapists.

Prototype Designer

Why do we need REFUEL-MS?

1 in 500 people in the UK are living with MS. 

Fatigue is one of the condition's severe symptoms, shown to impact quality of life significantly. While cognitive and behavioral treatments including exercise hold promise for treating MS fatigue, these are not routinely available in the NHS.

In our survey of 4,210 people living with MS:

90% reported experiencing fatigue, but only 8% had received any treatment

1

Stage 1

Developing the REFUEL-MS intervention and training facilitators.

2

Stage 2

Understanding how to adapt the intervention for underserved and seldom-heard groups.

3

Stage 3

Optimising the intervention by determining it optimal features and functionalities

Our Process

2

Stage 2

Understanding how to adapt the intervention for underserved and seldom-heard groups.

3

Stage 3

Optimising the intervention by determining it optimal features and functionalities

4

Stage 4

Considering contextual barriers and facilitators to refine REFUEL-MS

5

Stage 5

Assessing implementation outcomes and cost-effectiveness of the intervention

6

Stage 6

Integrating the intervention into a sustainable model, and adapting it to other conditions

Get Involved!

Patient and public involvement (PPI) has been crucial throughout the development of the programme and will continue to seek your input as we develop REFUEL-MS.

If you have seen one of our posters or heard about us from the community, please click 

If you have seen one of our posters or heard about us from the NHS, please click

Meet the Team!

Previous Members
 

  • Hiba Adan (Research Assistant)

  • Sanjana Prabhakar (MSc Research Project)

  • Remaira Seetal (BSc Summer Student)

Collaborators

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Afsana Faheem

Diversity collaborator

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Federica Picariello

Co-Investigator

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Marietta van der Linden

Co-Investigator

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Sarah Thomas

Co-Investigator

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Wendy Hendrie

Physiotherapist

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Alexandra Pollitt

Co-Investigator

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Helen Eldridge

Co-Lead of PAG

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Pam Bostock

Occupational Therapist

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Tracy Finch

Co-Investigator

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Trishna Bharadia

Diversity collaborator and MS champion

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Anisha Gangotra

Diversity and inclusive exercise collaborator

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James Shearer

Co-Investigator

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Sam Norton

Co-Investigator

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Tom Sanders

Co-Investigator

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Barbara Barrett

Co-Investigator

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Jenny Freeman

Co-Investigator

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Tom Mercer

Co-Investigator

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Victoria Williams

Co-Investigator

In The News

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Spotlight on MS

and Fatigue

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Study suggests most people with MS aren’t being offered fatigue treatments

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REFUEL-MS: Can a digital intervention help to improve fatigue in people with MS?

Man Trying App

REFUEL-MS: An app for managing fatigue in multiple sclerosis

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Meet the researchers who want seldom-heard groups to be at the centre of their research into fatigue

Thank You

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